At least with PMS he knew exactly what to expect. I would feel my mood turn sour and tell him I’m PMSing. He would leave me alone. Sometimes giving me extra compliments or hugs helped defuse my short fuse but often it was best if we just sat in different rooms. (Sounds not so healthy for marriage, I know.) But DH reassured me every month that he was not taking it personally, and he knew that he didn’t do anything wrong. We learned very quickly that nothing important could be discussed on my PMS days, especially anything where we might disagree. I was not capable of much rational thought those days; I was pretty much pure (negative) emotion. But this cycle that was totally gone. This is seriously amazing.
DH says this isn’t real; this is just polkadot on drugs. Hahahahahaha
It has me wondering though: Is this my true normal (healthy) state that naltrexone has restored? Were my endorphins so deficient before which caused the PMS and now they are back to normal levels?
It took me a while to get up to the 32 mg dose. PPVI had me start at 4 mg/day, and every 10 days the dose doubled. After I survived 10 days of 32 mg/day (divided up into four doses throughout the day), I could start taking the whole dose at night. The final dose will now be 50 mg at night.
Since I “graduated” from 32 mg (compounded) to 50 mg, I can now get the prescription filled at a local, non-compounding pharmacy. Apparently 50 mg is a typical dose for someone being treated for alcohol or opioid addictions, which is why normal pharmacies carry it. (Did you know that’s what the rest of the world uses it for outside of NaPro? I had to convince my doctor during my health scare in October that I did not have an addiction to drugs… haha) The nurse from PPVI said I can either take 50 mg or 25 mg (by cutting the pill in half). Since my mood has been
Months ago I had called around town to find a pharmacy that carries lactose-free naltrexone. I found one pharmacy that had it. When I called them on Friday afternoon to see if my new prescription was ready, they said they didn’t have any in stock and couldn’t order it until Monday. Boo. I'm not sure why they couldn't tell me that in one of the previous three times I called them last week... :P
Unfortunately I ran out of naltrexone, and it was two days before my cycle ended… Very poor timing. I don’t know if it was naltrexone withdrawal or just normal plummeting hormone levels that come with a new cycle, but I cried uncontrollably on and off all day for two days—on both the day before CD1 and CD1. It hasn’t been that bad in a long time. When DH tried to comfort me, my tears soaked his shirt so much he had to change it. :( I knew CD1 was coming the day before it happened because my temperature dropped, so that was part of the reason for tears. (I still have to monitor my temperature occasionally while on T3, and I know when my temperature drops, AF will arrive 24 hours later. Long ago before I met DH I charted sympto-thermal for my own knowledge.) I hope I’m more stable this cycle...
Because of the arrival of AF, Mass for Gaudete Sunday wasn’t the joyful occasion it’s supposed to be. Do you know how many times words like “brokenhearted” or “sorrow(ful)” were mentioned during Mass? At least six times at our parish. I know because I cried after hearing each one because it reminded me of our IF. With all the exhortations to rejoice, I tried but I told God I could not. Instead I told Him this cross is crushing me. Prayer Buddy, I offered it all up for you.
I don’t know whether to laugh or cry in admitting this. DH and I went out Sunday afternoon to finish Christmas shopping. I saw a woman holding a baby. I had the urge to take the baby. Bad, polkadot. Bad idea. I know I’m not the first IF girl with this thought. Maybe the second, but definitely not the first! It kind of shocked me to have that thought. It happened again while we were out. Twice in one day. Yikes. I promise I will never take anyone’s baby, but wow, did I feel desperate!
I’m kind of feeling like Rachel in the Old Testament when she says, “Give me children or I shall die!” (Genesis 30:1) I understand the desperation. I hate feeling this desperate, but it is what it is right now.
*sigh*
God, will you send us a baby soon? Please? Thanks in advance. :)








It sounds like I need to have more Naltrexone! My dose is only 4.5 and its been that way for awhile. I could use an upbeat attitude like you have. I really laughed out loud about the "polkadot on drugs comment." HAHAHA
ReplyDeleteYou are not the first woman to think about taking another woman's baby. I've thought that too. We had a little kid running through the parking lot unattended at the Immaculate Conception feast day mass ... no parent in sight. Another couple was worried too. Women suffering from IF would never take their children for granted.
I'm so sorry for your pain. Please know I'm praying for you.
I will repeat your prayer at the end for you.
ReplyDeleteI must admit, I was grateful to see my goddaughter and her family walk into mass on Sunday, because that meant I would get to hold Maggie and be distracted from the homily and intercessions....I know it's bad and seeing the other babies typically upsets me, but Maggie is the best thing for me during mass!
Nope, you're definitely not alone! My DH and I were in a party store once and a mom was screaming (and I mean screaming) at her child to pick out his party stuff. I was this close... :/
ReplyDeletePraying for you!!
Wow, I need me a higher dose naltrexone, I am still on 4.5mg. Your DH is funny. Yep, you are not alone on the kid part.
ReplyDeleteThat's AWESOME that the Naltroxene helps so much! I'm wondering why that was never offered to me for PMS symptoms. Hmm. Do you have any information on who it's offered to and what it does? Very interesting.
ReplyDeleteSC – I looked this up in the 1200-page NaPro textbook; a short summary of it is here. The first treatment for PMS is HCG injections or progesterone (oral or vaginal). If that isn’t helping enough, then naltrexone is considered. PPVI used to measure beta-endophin levels post-peak to identify candidates for naltrexone, but I don’t know if they do it anymore or just for certain patients. (mine were never measured) Naltrexone is especially good for people with both PMS and low endorphins. It blocks opiate receptors to increase endorphin levels. They start with low-dose naltrexone (up to 8 mg/day). From the data presented, a few women have good improvement of PMS symptoms on LDN. If LDN doesn’t help enough, then they taper up slowly to high-dose naltrexone (at least 25 mg/day). According to one small study they did, the vast majority on high-dose naltrexone saw marked improvement in PMS (vs. moderate, minimal, or no improvement).
ReplyDeleteThis site explains how naltrexone works. Dr. Hilgers is even mentioned on the Q&A page. :)
I am not sure how much all NaPro physicians know about the PPVI protocols. This is odd to me because it’s spelled out in detail in the textbook. The physician (not from PPVI) who originally started me on LDN never mentioned going higher than 4.5 mg/day. When I asked my first NaPro physician about increasing my dose from 4.5 mg, he said he had never prescribed naltrexone (low or high) for PMS before. I’m disappointed this isn’t more widely known in the NaPro world…
So much for teaching myself HTML in 5 minutes. The links from my above comment are:
ReplyDeletewww.naprotechnology.com/pms.htm
www.lowdosenaltrexone.org
Okay 1: Smiley all the time? GIVE ME SOME OF THAT STUFF!! Lol. My hubby would gladly have me on 50mg all the time, poor guy. I will be requesting this protocol if the adrenal situation doesn't give us the answers we need.
ReplyDelete2: I am glad you can find some humor in the mood changes and situation although that stinks the pharmacy dropped the ball. (And wow... I had no idea that's what they use naltrexone for outside NaPro! But I am still learning a lot...).
Oh dear!! I bet that was a reaction from not getting the Naltrexone. That stinks big time!! I hope this next cycle goes much better. I'm glad the meds are helping! I think it is how your body was really supposed to function...not just polkadot on drugs. Your body just needs a little help to be its best!
ReplyDeleteI've been waiting for my follow-up call from PPVI so I can beg to take LDN again. I haven't taken it since before my surgeries and I have noticed such a difference.
ReplyDeleteI feel like I've been on the brink of losing my mind for a while, you're definitely not alone.
Hugs and prayers!